Diagnosis Resources
What is HLHS?
Hypoplastic left heart syndrome is a complex and rare heart defect present at birth (congenital). In this condition, the left side of the heart is critically underdeveloped.
Prenatal Diagnosis
You are not alone. We share our journeys with you to give you hope and to offer encouragement. This book is a joint project of the National Pediatric Cardiology Quality Improvement Collaborative and Sisters by Heart.
A Child's Perspective
Hear how Mayo Clinic HLHS patients and their siblings describe HLHS, hope, and teamwork.
Single Ventricle Journey: A Guide for Parents and Families
Single ventricle congenital heart disease (CHD) is the term used to describe abnormalities in the formation of the heart when one side of the heart does not form normally. This guide is a collaboration between National Pediatric Cardiology Quality Improvement Collaborative Fetal Learning Lab with contributions from Sisters by Heart.
Umbilical Cord Blood Collection for Cardiac Use
Our easy guide to umbilical cord blood collection walks you through the process of collecting cord blood. If your baby has been diagnosed with hypoplastic left heart syndrome (HLHS) before birth, you may be eligible to enroll in our clinical trial using your baby’s own stem cells to help strengthen the heart muscle during surgery. If you have any questions, please contact our program at HLHS@mayo.edu.
FAQs on Umbilical Cord Collection
We get a lot of questions about banking umbilical cord blood (UCB). This guide covers the different options that are available.