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Family learns of baby's CHD diagnosis.

Diagnosis

It’s never easy to hear the words “there is something wrong with your child’s heart.” We have curated resources to help navigate the first steps finding out your child has HLHS.

CHD baby is born and will soon undergo the Norwood procedure.

Birth-Norwood

From the moment your child is born until they receive their first surgery can feel like a flash and an eternity at the same time. These articles will help you learn about the first stage of your child’s journey.

CHD baby during interstage period.

Interstage-Glenn

In between the Norwood and the Glenn can be an uncertain time. Click on the button below to see resources that support families in caring for and preparing for their child’s second surgery.

 
 
CHD family prepares for Glenn operation.

Glenn

When children with HLHS reach the ages of about 4-6 months they will undergo the Glenn procedure. We’ve gathered information to help you get ready for this next step.

Preparing for Fontan surgery

Fontan

The last of a three step process, the Fontan surgery typically occurs between ages of 2-5. Our team has pulled together materials that are helpful leading up to this event.

Post Fontan child

Post Fontan

Your child has completed their three stages of surgical intervention, now what? Find ways to connect with other families and support your child post Fontan below.