Fontan Resources

Raising a Toddler with HLHS

Parenting a toddler with HLHS can come with unique challenges. This bulletin was created by parents of children with HLHS, in collaboration with mental health and healthcare professionals, to provide information and resources that may be helpful for your family during your child’s toddler years.

Preparing for Fontan

The pre-Fontan stage can be both exciting and scary for patients and families. This bulletin was designed by parents of single ventricle patients in collaboration with mental health professionals and health care professionals, to provide information and resources for your family.

Fontan Hospitalization

Sisters by Heart provide tips to families and patients throughout their hospital recovery from the Fontan procedure.